Deborah Collyar has been a patient engagement leader since her first cancer diagnosis in 1990. She founded the Patient Advocates in Research (PAIR) international network in 1996, “where research meets reality.”
Deborah infuses hundreds of patient advocates into research programs, and delivers applied training and innovative ways to gather input from thousands of patients. Her work encompasses many diseases, programs and policies at grassroots, national and international levels emphasizing the patient voice throughout development, clinical trials, and health literate communication and public summaries with providers and patients. She is an author, speaker, grant team member, and faculty at professional workshops.
• Former computer executive with expertise in operations, sales and consulting, training, and communications
• Founded an international communication network called Patient Advocates In Research (PAIR) in 1996, “where research meets reality”
• First patient advocate in NCI clinical trial groups and brought 100s of trained people into translational, clinical, and healthcare delivery research
• Leadership roles in information projects with MRCT, Clinical Trials Information Project (CTIP), ICER, and led the Committee on Advocacy, Research Communication, Ethics, and Disparities (CARE) which studied public trial result summaries back in the 1990s.
• Regularly translates insights between science, medicine, and people